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Tuesday, August 26, 2025

How Proposition 19 Threatens Disabled Adult Children and the Families Who Love Them




 

The Broken Promise of Home

For twenty-six years, Trudy, a single mother for nearly 30 years, carefully planned for her daughter Lauren's future. Lauren, now 41, has autism and an intellectual disability that requires 24/7 supports, and receives $1,300 per month in SSDI benefits based on Disabled Adult Child Benefits. Trudy's three-bedroom condo in Saratoga, purchased for $430,000 in January, 1998, is now worth $2 million. Under Proposition 13, her property taxes have remained manageable at roughly $9,000 per year. The plan was simple: leave Lauren the family home, the place where she grew up, where she feels safe, and where local services support her community-based living. At 70 years old, if Trudy lives another 10-15 years, she will have spent nearly four decades ensuring Lauren has a stable foundation for life, while the impact of the impossible tax burden continues to rise. 

But California's Proposition 19, passed in 2020 and effective February 16, 2021, has shattered that dream.

What Proposition 19 Really Means for Disabled Adult Children

Proposition 19 fundamentally changed California's inheritance laws, requiring that children who inherit their parents' home must live in it as their primary residence to avoid a massive property tax reassessment. Even when they do move in, they only receive partial protection: the property can still be reassessed if the difference between the home's market value and its original assessed value exceeds $1 million (adjusted annually for inflation to $1,044,586 in 2025).

For families like Trudy's, and every family, this creates an impossible situation. Lauren's inherited condo would be reassessed from the current property tax base of roughly $9,000 per year to approximately $22,000 annually—an amount that would consume her entire SSDI income and then some.

While it's easier to ignore it, try this calculator that helps to figure out what your child would have to pay when they inherit the impact of Prop 19, and that exemption? It's only if the child lives in the home.
https://claude.ai/public/artifacts/5834099d-df2a-49db-aa34-790b8f95d3e2 

The Devastating Math

Consider the financial reality for disabled adult children inheriting California homes:

  • SSDI Income: Most disabled adult children receive between $800-$1,500 monthly in benefits
  • New Property Taxes: In expensive areas, reassessed properties often face $15,000-$30,000 annual tax bills
  • Living Expenses: Food, utilities, healthcare, and support services consume most remaining income

Even with the $1 million exclusion, many California homes exceed this protection, leaving disabled heirs facing partial or complete reassessment. In Trudy's case, her condo's value of $2.2 million minus the original assessment of $470,000 equals $1.73 million—far exceeding the protected amount.

The Service Network Catastrophe

The impact extends beyond individual families. Disabled adults often depend on carefully constructed networks of support services, medical providers, and community programs that took decades to establish. When property taxes force these individuals to sell and move, they lose access to familiar support systems and must rebuild their lives in unfamiliar communities, assuming services are even available elsewhere.

Dr. Sarah Chen, a developmental disabilities specialist, explains: "These service networks are not interchangeable. A 41-year-old with autism who has worked with the same behavioral therapist for fifteen years can't simply transfer to a new provider without significant regression. For individuals requiring 24/7 supports, disrupting these carefully structured relationships can be devastating."

The Generational Wealth Transfer Crisis

Proposition 19 has made it "financially untenable for children to hold onto inherited properties" in many cases, forcing sales that break the generational transfer of wealth that families worked decades to build. This disproportionately affects families with disabled children who were counting on stable housing as their primary inheritance strategy.

Unlike typical heirs who might choose to sell and invest proceeds elsewhere, disabled adult children often cannot make such complex financial decisions independently. They depend on the stability and familiarity of the family home—not just as shelter, but as the foundation for their entire support system.

When Parents Become Estate Planners by Necessity

Desperate families are now exploring complex workarounds:

  • Irrevocable trusts: Expensive to establish and maintain, with uncertain outcomes
  • Property gifts before death: Triggers income tax consequences and potential loss of stepped-up basis
  • Family LLCs: Costly structures that assessors may challenge as "step transactions"

None of these solutions are guaranteed, and all require significant legal and financial resources that many families lack.

The Return of Burden to the State

The cruel irony of Proposition 19 is that it undermines the very independence it claims to support. When disabled adult children lose their family homes, they often require increased state services:

  • Emergency housing assistance
  • Intensive case management during transitions
  • Crisis intervention services
  • Medicaid funding for institutional care when community-based support fails

Parents who spent forty years planning to provide housing stability for their disabled children now watch helplessly as state policy forces a return to dependency. For individuals requiring 24/7 supports like Lauren, the loss of familiar surroundings and established care networks can trigger behavioral crises that demand intensive, costly interventions.

Neighborhoods for the Wealthy Only

The reassessment requirements are "potentially leading to huge tax increases" that make it impossible for middle-class families to maintain inherited properties. In desirable areas like Palo Alto, Marin County, and West Los Angeles, entire neighborhoods risk becoming exclusive enclaves for the ultra-wealthy—the only ones who can afford the reassessed property taxes.

This gentrification-by-taxation particularly harms disabled individuals, who often cannot easily relocate due to their dependence on established service providers and familiar environments. Saratoga's exceptional schools and specialized programs that families spent decades accessing become unreachable for those forced to sell.

What Families Can Do

While options are limited, families should consider:

Immediate Actions:

  • Consult with both estate planning attorneys and disability advocates
  • Document the disabled child's need for stable housing and continuity of 24/7 supports in their Individual Program Plan
  • Explore available county and state housing programs as backup options
  • Consider whether other family members could move in and qualify for the exemption

Advocacy Efforts:

  • Contact state legislators about creating specific exemptions for disabled heirs
  • Support organizations working to modify Proposition 19
  • Document the real-world impact on disabled individuals and their families

Financial Planning:

  • Calculate the exact tax impact using current assessments and market values
  • Explore reverse mortgages or other financing options for parents
  • Consider setting aside funds specifically for property tax increases

A Policy That Demands Revision

Proposition 19 was sold to voters as protecting seniors and disaster victims while closing "loopholes" for the wealthy. But its primary victims are not rich families avoiding taxes—they're disabled adults losing their childhood homes and the support systems that make community-based living possible, and countless other heirs who will lose their family homes to crushing tax bills.

Community-based living represents decades of policy progress, moving away from institutional care toward supporting people with disabilities in their own homes and communities. This approach recognizes that people thrive when they can maintain familiar routines, relationships, and support networks. Proposition 19 threatens to reverse this progress, forcing families back toward institutional solutions when community-based supports become financially impossible to maintain.

The harm extends far beyond families with disabled members. Any California family that purchased a home decades ago and hoped to pass it down now faces the reality that their heirs may be unable to afford the reassessed property taxes. Teachers, firefighters, nurses, and other working families who built their lives and wealth through homeownership find their children priced out of their own inheritance. The policy effectively mandates that only the wealthy can maintain generational homeownership in California's desirable communities.

The $1 million exclusion, perhaps generous in 1980, is meaningless in today's California housing market. Even with annual inflation adjustments bringing the exclusion to over $1 million in 2025, it fails to protect working families in most of California's desirable communities.

The Human Cost

Behind every property tax reassessment notice is a family facing an impossible choice: drain their disabled child's limited resources paying crushing property taxes, or abandon the home and community where their child has built a life.

Lauren still doesn't understand why her mother seems worried all the time now, or why they keep talking about "moving somewhere cheaper." At 41, the Saratoga condo isn't just her home—it's her entire world. The familiar route to her job at the local community center, her weekly walks downtown, her longtime neighbors who check on her, her supporters who understand her specific needs for 24/7 support structure, t—all of it centered on that condo her mother bought twenty-six years ago.

Proposition 19 threatens to destroy that world, replacing careful family planning with impossible financial burdens. For California's disabled adults and their families, this isn't just bad policy—it's a betrayal of the promise that with enough love, planning, and hard work, a parent can secure their vulnerable child's future.

The question now is whether California's lawmakers will recognize this injustice and act to protect our state's most vulnerable citizens before it's too late.


The author encourages readers to contact their state legislators and the State Board of Equalization to advocate for specific protections for disabled adult children inheriting family homes. Every family's situation is unique, and this article should not substitute for professional legal and financial advice.

13 comments:

  1. Thank you, Trudy. I never understood prop 19 and its impact on special needs families. Your blog has explained it clearly. I am new to the whole process of contacting elected officials and government agencies. Is there a template for doing this? I would like to contact them and make them aware of the negative impact that prop 19 will have on special needs families.

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    1. You are welcome. What we will be asking for is an exception to this new rule. No template yet. Tell your story about your concerns and watch out for future action.

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  2. Trudy, so beautifully written and an amazing call to action. Thank you for reminding us in the middle of all this chaos and noise that there are so many important issues close to home we can’t let slip from our radar.
    You are the North Star to keep parents of adults with disabilities pointing to the big picture & not sinking in the weeds.
    Thank you for being you!
    MaryEllen

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    1. Thank you, Mary Ellen. You have been a model for me over the past forty years about how to make good change :) Love you!

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  3. Thank you for your thoughtful article and all your advocacy efforts. Looking forward to more on how we can advocate and support exemptions for prop 19.

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  4. Thank you, Trudy.

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  5. I’m so sorry you’re having to go through this.

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  6. Here is a video we did recently on this issue. https://www.youtube.com/watch?v=kcA9lOSoUjQ Unfortunately this can be a real problem and needs to be dealt with. Unfortunately it would take a proposition on the ballot to fix it.

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    1. Thank you. It will take great effort but it is through the action of parents that preceded us. We can make change if enough of us act.

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  7. The asset limit I agree with!
    If you want Developmental Disability Services services for yourself or close relative like a child then sell the home or condo and share the cost with that government agency the DDS. Supportive employment day programs and intermediate care facilties are not cheap. What about the poor like me that do not own a home we must rent apartments with paultry Supplemental security income or SSDI which I receive. I have with Moderate autism myself plus a rare genetic conditions called NF1.
    I report in ernest my income such as part time job to SSDI and Medicaid as required by law. I am in line to inherit property through grandmother and would allow a sell to not effect my SSDI income if my mother had too years down the line.

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    1. Thank you for sharing. You might want to speak with an estate attorney or attend some of the free sessions, and view videos about the topic of inheritance and how it might affect your benefits. https://dalelawfirm.com/educational-videos/
      There are also WIPA's https://www.disabilityrightsca.org/what-we-do/programs/work-incentives-planning-and-assistance-wipa who can help you with better understanding the impact on your benefits.

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  8. Thank you Trudy for this great and very informative article. Say hi to Lauren - we miss both of you. Deb, Eric, and the twins (now almost 27!).

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  9. Excellent informative letter explaining the impact of Prop 19 on our population. It will take a bill to make changes. It is unlikely that a bill repealing Prop 19 will pass currently, especially with the loss to Calif from federal budget decreases to Medicaid/MediCal foodstamps and many other programs. Howard/Jarvis supporters tried and did not get enough signatures to put a measure on the ballot. However with the major shortage of housing for the disabled and all the other issues that Trudy so eloquently described, we should be able to build a strong case for a bill to exempt those with disabilities and very low income from a property tax reassessment . Hopefully we can get 1 or 2 legislators to sponsor a bill. We need to find state legislators who might be sympathetic to doing this and start talking to them now. Also talking to your local county tax assessor about what the impact would be when your child inherits your home would be useful for estate planning if you plan to do an intergenerational transfer and doesn't cost anything This link also is helpful with the FAQ's on the intergenerational transfer of property .https://abioproperties.com/market-news-trends/californias-prop-19-explained-whos-winning-losing-or-just-plain-confused/ INMHO the longer this bill is not challenged/changed in any manner, the harder it will be to change it. Advocacy will be needed and with Trudy's letter we can start educating now
    Thank you Trudy

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